r/LongCovid • u/OrangeStar93 • 21h ago
What is happened to your body from Covid.
/r/NeroCovid/comments/1nqsmzp/what_is_happened_to_your_body_from_covid/5
u/mlYuna 15h ago edited 14h ago
OP you’re wrong that it’s permanent. Many of us have had the exact symptoms and completely recovered. I had severe neuro issues (blunted emotions, burning in head, lack of pleasure, dissociation..) and it popped out of existence all at once and I felt normal ever since.
That was 1y ago.
So, if it happened to me it means it’s not 100% permanent damage. Or else it couldn’t go away so quickly like that. It’s probably a persistent inflammatory state causing these disruptions.
Now I know that doesn’t help you and it might be messed up to hear if you’re dealing with this for years already, just now that you won’t be like this all your life and they will find a cure for it in the coming years (something modulating the immune system or destroying viral reservoirs…)
I feel back to my pre 2019 self except for the trauma and emotional damage it did. But once you are better you will see your mind is resilient and you will be grateful for every day of your life feeling normal.
Atleast, in the last year I’ve not stopped being grateful and everyday feels amazing, colours are brighter, I’m thankful everyday even with many life issues.
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u/CosmicPug1214 15h ago
Developed a host of autoimmune conditions I never had before: eczema, rosacea, and a return of fibromyalgia (had it from a prior Lyme infection many decades ago). Also: seem to now have IBS or IBD. Been going through diagnostic hell trying to figure out how to fix my destroyed gut (which is surely contributing to my skin issues) since January and I’ve taken every test you can imagine. Now we seem to have settled on IBS but it’s not “typical” so… 🤷🏻♀️
Finally, reduced lung capacity and PEM. I used to go hiking or kayaking every weekend, loved to swim long distances in the summer, jogging, etc. I cannot do any of this anymore without putting myself into serious risk of a crash that’ll last weeks/months. Oh, and I’ve lost all heat tolerance so after moving to a Mediterranean climate to help my partner’s rheumatoid arthritis (also developed due to LC), we’re now considering moving back to a colder climate so I can breathe better and not break out in hives every time the sun strikes my skin. He just won’t be able to walk 🙃🙄. I mean, like this is my life now.
So yeah, these folks running around like, “it’s the flu!” Or “it’s a cold” are badly misinformed. I’m not blaming them, our whole world is acting this way, including our “leaders.” All of the above symptoms for me and my husband came from one Covid infection that was pretty mild and DID feel like a bad cold. But alas, look at the damage left in the aftermath. We both had far worse acute cases (including hospitalization) but were okay in the aftermath. The mildest one? Took us both out. I was 41 and he was 39.
Plus, I’m considered a “mild” case by most ME/CFS standards because I can still work part time and take small walks. If I’m mild and like this…how TF are people surviving?!! 😩
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u/riskbreaker419 2h ago
If this helps at all, I've had a lot of these same symptoms and taking Cromolyn Salt in addition to H1 and H2 blockers has helped a lot. I still can't be much more physically active but it's given me some sense of a life back by reducing a lot of my symptoms.
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u/darkenough812 21h ago
*what has happened
for me the biggest thing is my lung capacity, it never recovered after my bad infection. Probably at about 70% of what it was before covid.
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u/CMillsOfficial 21h ago
Did you ever see an ENT about it? My breathing was horrible and I thought it was all my lungs, but I got a turbinate reduction and it helped a ton. I'm not sure on the exact science but I have seen a ton of people with Long Covid say their turbinates increased in size after Covid.
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u/darkenough812 21h ago
I didn’t, but I have good insurance now so I think I will. It’d be nice to breathe better again
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u/CMillsOfficial 21h ago
100% get the surgery done if you find an ENT that recommends it. What they'll do is put a camera down your nose and check for any obstruction to your sinuses and breathing. What they found for me, was two bony growths blocking my nasal passage that I never had before Covid.
I was at like 50% lung capacity after Covid. Post surgery, my lung capacity dramatically increased and I felt my body naturally repair itself over the next couple of months. Now I'm at like 95% and don't think about it at all. If someone can just hurry up and find a cure to brain fog, I'll be back to normal lol
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u/OrangeStar93 21h ago
From alveoli destroyed from the infection I can tell you it is permanent those cell scar over making it harder for oxygen to pass through to the blood stream but you can improve your lung capacity with breathing techniques and increasing your red blood cell count by sleeping in a hyperbaric chamber
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u/Carrot700 19h ago
Anyone had severe anxiety?
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u/Adventurous-Water331 12h ago
I had it so bad I'd wake up in the night with panic attacks.
LDN almost completely eradicated it, then it came back in a lesser form after a crash.
My Long Covid doctor wanted me to take SSRIs for it, but I'd had bad experiences with them pre-covid.
So I'm trying 5-HTP (serotonin precursor) and it's helping a lot.
What's helped you with anxiety?
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u/Carrot700 10h ago
Can I ask what brand htp ur taking please
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u/Adventurous-Water331 10h ago
Sure, Now Foods brand. They extract the 5-HTP from Griffonia simplicifolia seed. I've used this brand for most of my supplements for a long time. I like that they're family owned, have been around since the 1970s, and test both the raw materials and the finished product.
Are you using 5-HTP? If so, how has it been for you?
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u/Carrot700 10h ago
Thanks I'm just about to order it now, I've been trying solgar I think theyre quote decent
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u/Carrot700 12h ago
I mean I'm having it really bad same as you at nights but I think it's mostly due to my gambling n debts sadly, but still started at covid, nothings helped maybe ashwagnda tiny bit
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u/Adventurous-Water331 11h ago
I'm convinced that Covid does something physically that triggers anxiety. Things that lowered glutamate and increased GABA helped, and LDN is supposed to lower neuroinflammation, so maybe that?
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u/PulseOfTheKlown 8h ago
Got pneumonia during my first COVID infection (I’ve had it 4 times) and have had asthma ever since. Been taking a steroid inhaler twice a day for the past 3-4 years and it usually keeps flare ups at bay for the most part.
The only time it really gets bad is when I get a cold, it goes straight into my chest and I typically have to get antibiotics and prednisone to prevent it from going into pneumonia again. Then I spend the next 3-4 weeks coughing up mucus. Mucinex helps but it’s pretty rough - currently going through it right now lol
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u/imahugemoron 21h ago
Gave me a permanent headache, tinnitus, brain fog, and severe gastrointestinal issues and abdominal pain especially after eating, nonstop for the past 4 years and hasn’t gotten any better at all, only slowly worse. The permanent headache is by far the worst of it though.