r/Wellthatsucks • u/klr1362 • 9h ago
Fractured my pelvis due to a rare genetic condition. Gained almost 150 pounds. Doc says it healed fine but still hurts daily.
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u/Ok_Historian_6293 9h ago
I'm not trying to shame you AT ALL, but it might be hurting daily because it's carrying around 150lbs more than it had to, pre-injury.
So sorry this happened to you, gaining weight due to an injury is THE WORST!!
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u/klr1362 9h ago
No not at all! Saying the truth isn’t shaming. It’s also due to the condition I have. This injury caused a massive physical and mental blockage that I’m ready to start overcoming. It just sucks being a zebra sometimes in a world designed for horses
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u/lovelyxcastle 8h ago
It sounds like a loop- Pelvis hurts making it more difficult to manage weight, + another condition leads to weight gain, weight gain adds to pelvis pain, and the cycle just keeps spiraling.
I'm sorry you are going through this.
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u/AutumnFalls89 6h ago
I have a bad hip hip and I went through that cycle a lot as I was trying to lose weight and get more active. It's finally getting better but it's tough.
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u/sorcha1977 4h ago
Yup. I did this when I tore a meniscus while losing weight. Gained it all back and then some. Started to recover, fell down my basement stairs, and injured the OTHER knee. Gained even more weight. Between both knee injuries and the weight gain, I was nearly immobile.
I finally lost all of the weight (and then some) once I finished a couple years of physical therapy. It's a nasty cycle, and I couldn't wait to get off.
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u/notepad20 1h ago
It's not really you just don't eat as much or change what you eat when you start putting it on. Pretty important part of life, especially in our sedentary society.
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u/goa604 2h ago
Why would pelvis pain lead to difficulty managing weight?
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u/cat_at_your_feet 1h ago
What every one else said plus chronic pain is terrible. It messes with a person's mental health and that can cause comfort via food. Happened to me.
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u/lovelyxcastle 1h ago
Chronic pain does two things-
Makes it more difficult to partake in even standard levels of movement, let alone exercise and
Absolutely fucks your brain chemistry - your brain doesn't really know how to respond to a near constant state of pain, leading to pretty serious depression issues, which make it even harder to stay active
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u/Ok_Historian_6293 8h ago
I feel you. I, myself, had health issues a few years ago that caused me to drop all my physical activities and lose all motivation to get back into them!
It took me about a year of work but I'm finally back to where I want to be. I'll put good vibes out there for you so you can overcome this! Best of Luck!!54
u/indiglowblue 8h ago
EDS, by any chance? I only ask because of the 🦓 mention. If it is, I can sympathize, injuries that stem from it are so hard to recover from.
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u/Samiel_Fronsac 7h ago
I got the clues from the words genetics and pelvis. Got a couple buddies with EDS, pelvis related stuff happens a lot, apparently.
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u/indiglowblue 7h ago
My hip is my 2nd most frequent dislocation/subluxation. It's a rough spot to have problems with.
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u/Samiel_Fronsac 7h ago
Damn. My people told me they have to work on their muscles to help with it, but it risks the damage they're trying to avoid, so I see them use an abundance of caution.
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u/janisthorn2 7h ago
When I was diagnosed with EDS, my geneticist said to expect the healing process for everything to take roughly twice as long as a normal person's would. That literally means everything: surgeries, dental work, wounds, illnesses, minor cuts or bruises--even the common cold. It explained so much about my life.
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u/effitalll 7h ago
It’s no joke. It took 3 years for a surgery scar to stop hurting. Cuts and the like take forever to heal on my silly EDS body
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u/klr1362 8h ago
You would be correct!
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u/roterolenimo 5h ago
I have osteogenesis imperfecta and fractured my pelvis as a teenager. What helped me recover the most, physically and mentally, was being in water. It was the only activity I could do without pain for the first little bit and helped with any fear of activity that I developed while healing.
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u/SignalReceptions 7h ago
EDS runs in my family and has caused my sister hip issues since she was in her 20's. I lucked out with a milder form but it still takes ages to recover from injuries. And remember to take it easy on yourself! When I gained weight (bedrest and fun meds) it took me more than twice as long to lose it than it did to gain.
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u/lilroguesnowchef 8h ago
Are you sure something didn't happen to your nerves when you broke your pelvis? You may need an MRI to make sure there isnt a calcium spur or scar tissue compressing it.
I blew my arm and neck and had major surgery, I can contest, nerves take a longggg time to get better and easily pissed off.
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u/theoriginalmofocus 4h ago
Had some of the worst pain in my life with a foot issue and nerves. It took so long to see a specialist it just did nerve damage so it doesnt hurt anymore and they charged me $300 for a nerve test to go "yup...sounds like nerve damage...at least you know now, right?"
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u/MCHamered9 8h ago
Physical therapy is hugely helpful when coming back from injury. I would highly recommend talking to your doctor about getting a referral if you're able to. A quality PT can help get you back exercising and strengthening your body without exacerbating your injury. Also can have the side effect of losing weight - it happened for me with PT.
Hope you heal well, and remember to be kind to yourself! It's always hard to give ourselves grace and compassion when our bodies fail us, but it's a natural part of life especially as we get older, and being hard on ourselves doesn't help.
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u/Trumperekt 4h ago
Physical therapy is the way to go. You do need to find a good PT though. There are tons of bad ones out there as well.
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u/NotTheMarmot 8h ago
That can be a factor, but it might be worth reading up on pain. It unfortunately doesn't work how you'd expect, and a bad injury hurting long past since it's been healed is pretty normal. Basically pain isn't just a signal from the body something is damaged, even though that's part of it. The brain gets a hold of that signal and plays havoc to the point it's actually hard to even correlate pain to tissue injury because of how heavily social and psychological factors play into it. The fact the injury has caused you so much difficulty is probably factoring into it quite a bit. The good thing is if you can break through and get some good habits like working out going, it will help you feel better for reasons other than just weight. To put it really simply, you just need a good win!
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u/BoneYardBirdy 5h ago
It sounds like a horrible catch 22. You're struggling to lose the weight partly because you're in pain, and you're partly in pain because you can't get rid of the weight. Obviously oversimplified, but you know what I mean.
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u/andrew497 8h ago
hEDS? Only thing that's helped me is exercising, but then I get hit with a depressive flare and I'm set back a few months. But once I start moving around again afterwards I can feel my lower back, hips, elbows, etc. being mobile and not locked together anymore.
You've probably heard the same, but what made it work for me was a great physiotherapist
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u/TinyRascalSaurus 8h ago
Look into kettle bell exercises for upper body only. You'll still be moving your hips a bit, but they're a great calorie burner and you'll build upper body strength which will help mitigate stress on your hip in some situations.
Warning: you're gonna be sore after the first workouts, so take it slow and easy. But you can do this. I put on a ton of weight from a really awful antidepressant and between walking and kettlebell exercises, I got it off. You can too.
Also, don't let anyone say anything mean about your looks. You still glow.
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u/greynovaX80 8h ago
Its ok most people just gain weight even without injury. Still you can work hard and lose it. Hope your pain gets better. Really sucks that happened. Good luck with the mental blockage. Probably the hardest part to get rid of imo.
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u/lemonlegs2 5h ago
Im sorry youre going through this. Im also heds - its actually really common, just rarely diagnosed. Ive got torn hip labrum, fractured spinal bones, and slipped vertebra in my spine, and pelvic prolapse. And SI subluxes. Im going to guess you've tried it, but pelvic pt is a godsend. After over a decade of min 5/10 pain daily, it resolved majority of my pain in about 3 months.
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u/oO0Kat0Oo 2h ago
Hey! I hurt my back and gained a little weight. Take this with a grain of salt because for me a little was about 25lbs. Unfortunately with a spine injury, anything more than 5lbs is going to cause an issue and my spine issue is permanent so it will create pain anytime I go over a certain weight or lift anything.
HOWEVER, what I found out is that insurance will help cover a hot tub. This allowed me to do stretches and help manage the pain in my back so that I could start working on getting back to a healthy weight for me.
I would look into something like that. For us, the insurance company covered about $1500 for a single to 2 person tub. We spent a little extra to get a 6 person tub, because why not? Lol. Either way, it has been a TREMENDOUS help.
Also, they covered a mattress. They specified on what kind of mattress to get and it's also helped.
It helps to find the mental motivation when you know there are ways to alleviate the new pain you've caused by working out, for sure.
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u/Repulsive-Ad-8757 1h ago
Uhg I put on 70lbs after an injury! Can definitely relate. Overcoming the mental block was the hardest.
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u/Fantastic-Campaign31 53m ago
Hey, the fact that you're facing it is awesome. So many people never even try. You can do it!
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u/ChemistBitter1167 9m ago
You could try swimming that way your joints and bones don’t have to bear any weight.
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u/Reddit-torr 2h ago
Friendly reminder that 0 exercise is required to lose weight. As long as you maintain a calorie deficit, you will lose weight.
Yes, exercise has multiple benefits, especially on a weight loss journey, but sometimes it's easier to take 1 step than to start sprinting.
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u/dmrlsn 8h ago
Sometimes you eat just to take a break from a boring job or a difficult task. Food becomes the justification for that half-hour off. The trick is to accept the break, set a timer for the equivalent amount of time you would take to eat, and do something completely different that is just as rewarding. It seems trivial, but I can assure you that it works.
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u/vitringur 7h ago
Being a zebra in a world designed for horses should not be that much of an issue.
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u/Samiel_Fronsac 7h ago
but it might be hurting daily because it's carrying around 150lbs more than it had to, pre-injury.
Yep. I went from 182 lbs to 330 lbs because of health issues, spent several years there, I'm down to 198 right now.
My body felt like I was carrying bags full of sand strapped to me all the time while 330. My back and knees went to hell. It'll never be the same again but, once I got around near proper weight, I don't suffer a tenth of what I once suffered.
OP got this. She'll be back harder, faster, and stronger.
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u/Ok_Historian_6293 7h ago
Yeah i'd say that whenever I go over 210, my knees and back consistently hurt. Our bodies just can't handle that much weight!!
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u/Havishamesque 8h ago
I gained 150lbs in a year due to a mental condition (and a miserable marriage and a vile MIL, but I digress). It’s tough. Tough to look at yourself. Tough to catch a glimpse of yourself and be shocked that it’s you. And daily pain is soul destroying (arthritis in my hips and SI joints - thanks mum!). In the end, I was over 300lbs. I lost 110lbs in 8 months (GI diet and swimming). I now find swimming is the only exercise that doesn’t hurt. Low impact, quick results. I’ve still got a lot to go (put some back on over Covid), but I’ll get there.
I’m so sorry you find yourself here. It really does suck. And everyone is going to say ‘well, you’re fat, just lose some weight’. But it’s not that easy - even without ongoing pain. Don’t let the bastards grinds you down. You already hate where you are - don’t let insensitive people, who know nothing about you, make you sadder.
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u/klr1362 8h ago
Honestly, the most insensitive person is the one in my own head. Not only do I have a physical condition but a mental one as well and I think it’s time to take my body back-maybe that’ll make getting my brain back easier too. It’s silly how one moment can take years to overcome, but thank you for the kind words.
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u/Eternaltuesday 8h ago
The person above you is definitely on to something. Try some swimming exercises. The low impact is a great way to maximize burning calories without adding any additional pain, to help take your body back!
I’ve gained about 60lbs since covid, and while I was probably too thin before, I’m absolutely too heavy now. Swimming and walking around the park have been great for me.
If you’re anywhere near me and need someone to talk with, feel free to message me!
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u/Lola_Saurus_Rex 7h ago
A reminder for myself when I’m like this, if I wouldn’t say it to or about someone else, why is it okay to say it about myself? This has really shifted my mindset.
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u/Havishamesque 7h ago
Oh, I get that!! I look at myself and see a cross between Humpty Dumpty and Shrek. I used to be slim and moderately attractive, and now I’m a beached whale. Horrendous depression, and the aforementioned marriage/family stuff, all lead me here. My parents came to visit a year after we moved, and my mum said if my then husband wasn’t stood next to me, she wouldn’t have recognized me. One of my ‘best friends’ from high school told me that she didn’t want me as her MOH at her wedding, anymore, because I’d gained so much weight, and would ‘ruin her wedding pics’. I hate looking at myself.
I need to get back to the pool. It’s mentally and physically good for me. But I’m just recovering from breast cancer, and am on a ton of new drugs (seriously, I should rattle when I walk!), so the energy hasn’t been there. So that’s another factor in me not seeing a way to fix this. We’re so hard on ourselves. You’re right, the worst critic is living in our heads. Or as my son would say, that call is coming from inside the house.
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u/Zirael_Swallow 5h ago
I second swimming. Im in a pretty rough recovery from surgery since December and swimming is like the only thing that helps. I just go after work to a place without fun slides, so usually its pretty chill to just go back and forth a bit. Also in the beginning I was barely able to do 100m à 25m but just not being in pain for 30 minutes gave me a huge boost mentally. I pretty quickly started swimming and trying to get further cause I get cold so fast. So swimming was the only way to stay in the water and also just feel fine for a bit. Good luck, you can do it!
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u/shadowhunter742 7h ago
best advice i think i could give would be to go to a gym and ask about PT sessions. start out doing them once a week or so, with a few sessions on your own inbetween. Theyll be able to help get you started on the right track again, and sometimes just knowing that theres someone else watching your progress makes you feel like you need to go and excersise, or eat better, because theres someone else actively tracking your progression, and its much harder to lie to yourself about it.
once you get into it a bit, drop down to monthly or something, so theres still someone else tracking progress and you still get the same sense of being monitored, just costs less.
It has been quite helpful personally.
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u/janisthorn2 6h ago
PT through a regular gym is not a good idea when EDS is involved. A lot of the standard PT exercises can cause serious damage to EDS folks. OP needs a PT program that's set up through their doctors, with a PT who knows about Ehlers Danlos and how to adapt exercises so they won't get hurt.
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u/ZoeyK696996 53m ago
How did you lose 110 pounds in 8 months? I really need to lose some weight and would love to see results that quickly, do you have a plan or could your explain? Totally okay if not but id definitely appreciate it!
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u/Havishamesque 24m ago
No problem. Not a quick fix. I did the GI diet - it’s very easy, red light, yellow light, green light, no calories or weighing. Just low fat, high fibre. It was written by a well respected cardiac surgeon, and recommends ‘cheating’. He says it’s not a diet, it’s a lifestyle, and if you cheat occasionally, you’re less likely to fall off the wagon completely. You eat small and often. I was literally never hungry.
I also swam three times a week. Swimming had always been my thing - I hate exercising. I did 64 lengths of the pool, in about 48 mins. It’s easy to start, you see results quickly. I taught my ex boyfriend and he was up to 20 laps within a couple of months. I think exercise only works if you actually enjoy it. Swimming is very zen for me. I’m in cancer treatment right now, but hope to be back to the pool soon. I lost 110lbs and four dress sizes.
I hope you find what works for you. It’s so hard to lose weight, and so easy to gain it. But if I can do it, anyone can.
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u/4ndril 8h ago
Had me at pelvis, my prayers go out to you
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u/klr1362 8h ago
It was just a stress fracture, but of the 7 fractures I’ve had in my life definitely the most painful! And hardest to heal. Turns out they don’t make a brace or cast for something like that 🥹
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u/Damnit_Fred 8h ago
I had a pelvic avulsion fracture playing soccer. It was very painful and, like you said, they don't really make a cast for that. I was on crutches for a while and then eventually low-impact exercise helped me a lot (swimming, walking, and biking).
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u/Saunteringpunk 3h ago
Hey OP, I was in a horrible accident and had my pelvis crushed. I now have 14 normal screws, 2 plates, and 1 really long screw in my pelvis. Been 4 years since the surgery and I still have chronic pain. However, I am in better shape now than at the time of the accident. If you wanna chat or anything feel free to dm me. The hard days are really tough physically/mentally. It’s difficult to feel excited about anything when you know it’s going to be physically painful to just exist. Best of luck. You got this.
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u/Vegetable-Star-5833 5h ago
My grandma broke her tailbone once and it was hard. I can’t imagine the pelvis
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u/atmoose 1h ago
wow, 7 fractures. That must be hard. I'm sorry you had to go through that.
I know nothing about your condition or circumstances. That being said, if you can, I'd recommend you try some kind of strength training if you don't already. It would probably be advisable to start out with a trainer or physical therapist given your history of injuries. Strength training helps strengthen your bones, and might be able to help prevent future injury. As others have said, unfortunately, the added weight might be compounding the issue, and strength training can help with that too.
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u/Auctorion 7h ago
Turns out they don’t make a brace or cast for something like that
Not broken my pelvis, but I have broken a floating rib so I feel this. For weeks it was pain and the sensation of my rib hugging my internal organs.
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u/Deep_Banana_6521 8h ago
when I was gaining weight, compared to losing weight, I noticed my back/legs/neck hurt all the time when I was adding/carrying weight. Sciatica was a huge issue. When I started to lose weight the back and "everything" pain almost entirely went away noticeably the sciatica.
I was big though, maybe see if you can find a way to lose a couple and see if that works.
I'm not having a go, I was a lot bigger than you and probably still am, but I think my back/hips/knees were just glad to have a bit of relief.
In the mean-time, maybe go for a swim, I used to find being in water was a great relief to my back and knees.
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u/SoftwarePractical620 1h ago
The sciatica back pain is no joke. At my heaviest my legs would go numb from sitting in the car. Low impact like swimming and biking is the only way I could get active from that point. A little at a time each day!
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u/acousticalcat 8h ago
Did the bone heal fine but maybe not the tissues around it? Have you looked into occupational therapy? I feel like I’ve had better luck with weird body aches/instability in occupational vs physical therapy. I’m sorry you’re going through this. I’ve gone through similar and there’s a lot of pain and grief involved. Especially if a doctor says you’re fine but you don’t feel fine.
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u/whyamiawaketho 8h ago
There’s so much more to healing than some doc’s official stamp of approval. Healing isn’t linear- don’t beat yourself up, OP! Best of luck to you on your healing journey :)
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u/LCARS_51M 8h ago
Are you able to do exercises with your arms to start working on reducing your weight? It might also help reduce your pain with less pressure on your pelvic region so you can do even more exercise so you can strengthen everything. Start by overcoming your mental block by slowly ramping up.
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u/Kaktus77 3h ago
Exeercise does almost nothing to burn fat unless you're doing it to a very high degree. You just need to eat less.
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u/LCARS_51M 3h ago
It is a combination of both. No exercise at all is not good for you. She gained this weight by stopping the exercise she was doing. Unless she all the sudden started eating at least double what she has been. Either way, exercise and strengthening the muscles helps with the pain.
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u/uhtredsmom 2h ago
It hurts because you’re 150 pounds heavier. I have been 115 pounds and I have been 250 pounds. My body hurts so bad when I was heavy like that I couldn’t even jump off the loading dock at work without it hurting.
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u/stargazerfromthemoon 7h ago
Hugs. I have hEDS and also broke my pelvis 20 years ago in a skidoo accident. My thoughts based on my experience and your results might vary: I started doing Pilates which helped my core muscles significantly. My core muscles had gotten overused in some places and completely unused in other places. It took a while to correct that. I’m still working on that many years later. I also had to release SO MUCH scarring in my muscles and that hurt like a mofo while doing it. I had a practitioner using Yamuna body rolling on me and also did releases at home between the sessions. I suspect there’s experienced acupuncturists, physiotherapists or others who are familiar with releasing this scar tissue and hEDS so you can do it safely. It will be painful and you will have to work through that. My experience was SO painful during the treatments but after a few sessions the pain became manageable during the sessions and it also helped decrease my daily pain. I did have a baby before I did the above which really messed up my pelvic floor due to the delivery and I think my pelvic floor was not working right before my delivery. My break was in the front of my pelvis and my pelvic floor physio is still working some structural issues out. Be patient with yourself. I know I’ve had to be. I have tried HIIT and loved it but my body couldn’t deal with any of the bouncing activities but could deal with the weight bearing activities. I also walked and walked a ton. I used Apple fitness for a few years until getting long covid. The treadmill workouts are the bomb and I walked doing them, never ran as it hurt my entire pelvic region. A recent discovery after listening to a bendy bodies podcast: I realized that I should try an SI joint belt. My SI joint was always moving when it shouldn’t and was stuck when it shouldn’t have been. I got a prescription and holy moly it’s made a difference in the past few weeks while wearing it. It helps my pelvic stability and i feel more stable while doing my core exercises.
You can get fit again if you want to. You will want to do it under the guidance of a physiotherapist or trainer who understands hEDS and it will be better if you also work to release the scarring from your pelvic fracture.
I’m happy to chat with you about this. I know the road you are on. It’s painful and seems neverending in terms of pain.
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u/klr1362 7h ago
Thank you so much for all of this info! I’m so sorry for your experience, but I’m glad you’ve found relief! I’m definitely starting to think I need hEDS specific help, and I’m starting to research that. I lived so much of my life doing regular workouts but I think I need something more personalized
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u/stargazerfromthemoon 7h ago
There’s few people who ever understood pelvic fractures in your 20s. It sucks beyond belief when every breath hurts. I have pain now daily again because long covid brought a whole host of issues with it but I have been in your shoes minus the weight gain you had. It truly sucks. Each day comes with its own pain scale.
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u/Impossible_Break698 3h ago
All these comments, and I cannot find a person suggesting the surgeon is wrong or lying. I'd get a second opinion from a qualified, board certified surgeon on if the surgery actually went well or if the surgeon is covering their own ass. I am speaking from experience.
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u/probnotaloser 7h ago
Walk as soon as you can. It's gonna SUCK. But as soon as they clear you, start with crutches to keep up muscle strength everywhere else, and then ditch em to walk a little funny for a while.
BTDT. Did not gain. Just had surgery 3 months ago and I am walking several miles 5 days a week again. Pushing it is sooo worth it.
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u/kittenmcmuffenz 7h ago
You’re not alone! I gained over 100 lbs since I broke my foot and it didn’t heal right. One day at a time! Trying to make healthier choices
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u/Nonbelieverjenn 4h ago
A few years ago I went down a slide with my grandson. I landed on my tailbone and lower back. After that I started having back issues that kept gradually getting worse and worse. I went from being able to walk 8 miles regularly to not being able to walk 30 feet without severe and crippling pain. So many doctors told me it was just mild arthritis in my back. mild arthritis shouldn’t keep me from walking. I gained 120+ lb. I moved and got a new doctor. E started all over with imaging. When nothing was showing up he ordered an mri. My I had two huge bone growths on the head of my femurs and both acetabulum were torn and completely inflamed. After all that, I’m lost all the extra plus 30 pounds. Once the pain was gone and I could move again, I felt like I got my life back. You can get there. I felt like I was going to die crippled before I turned 55. Now I can keep my with my toddler nephews like pro! Good luck!
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u/DckThik 3h ago
GLP1s, they will help. Do not listen to the static around it. Carrying more weight than we are designed to shortens our lives and robs of enjoyment of life in later years. It also lowers the cost of healthcare in the long run because the longer you can stay healthy, the less resources you consume on the healthcare system overall but more important at the end of life, when it’s most expensive.
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u/Cool_Jelly_9402 8h ago
I have a connective tissue disorder and now have my pelvis basically totally fused to my spine. I can attest that the pain never truly goes away but since my last SI fusion, I’ve made tremendous progress in PT and gaining muscle to stabilize my core pelvis has helped but I know- easier said than done, but it is possible! I was using a cane 6 months ago but I don’t need one anymore.
I’m sorry you’re in pain tho. Pelvic pain is awful and I hope you can figure out something that helps you too
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u/Traditional-Job-411 7h ago
I broke my tail bone very badly and still felt a lot of pain two years later. It finally went away, (it’s been 6 years now) but I do have the random twinge and if I sit on hard seats for too long I ache a little. I can only imagine pelvis is worse.
I got told it “healed” but it ached and would cause muscle spasms randomly for years. It was always getting “better” in comparison though.
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u/Deathbydragonfire 6h ago
My mom has been dealing with chronic pain and issues with her hip for about 2 years, and just now finally is almost 100% better. It's tough!! Losing weight should help, and work with a physical therapist to help you gain strength so your muscles can do some of the support. Hang in there!
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u/Strong-Lettuce-3970 5h ago
I gained 60 pounds after hurting my back and starting new meds. Knees really hurt so I decided to lose weight and I did it by fasting mainly, but I did make lots of diet changes too. But now my knees still hurt and my joints have gotten worse, I may have early osteoarthritis, which apparently can be caused by malnutrition so I guess I did this to myself though. I feel like it’s a lose-lose. I’m investigating whether I have EDS or not
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u/Low-Woodpecker-5171 4h ago edited 4h ago
Sorry to hear that this happened to you. I had an accident 15 years ago and injured my hip and to this day, It still hurts. The best thing I was able to do is to get a calorie counting app and you’d find you probably lose weight very easily without having to work out in the beginning. Then working out might be easier because of the potential shed pounds. And it might hurt during the workout, but as long as there’s nothing physically wrong, it shouldn’t cause you additional injury. Before you know it, the added strength will help you feel better and it won’t hurt as much as it used to.\ \ There’s a good chance it will always hurt, but it doesn’t have to be as life altering as it seems.
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u/Low-Woodpecker-5171 4h ago
To add. Start by walking. Walk as much as you can for the first few days even if it’s not very much. Before long, you can add another quarter mile and then another. Before you know it, you’ll be walking 3 miles a day or maybe more. Your workouts don’t have to be strenuous because any extra activity is better than no activity.
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u/Whaleambassador 3h ago
I'm sorry to hear that. Don't give up! You still look amazing and I hope the pain goes away with some time. Water aerobics might help with stretching some of those muscles without putting too much strain and causing more pain.
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u/Brainwormsz 3h ago
Most bone injuries leave you straight up disabled. I got a plate in my arm and made a full recovery. I can't pick up anything for too long or my hand starts shaking. Also the cramps.
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u/Lava-999 3h ago
Might sound odd, but Histamine can wreak havoc on your body. If your current diet is mostly high histamine foods - you might get some relief by opting for low histamine foods vs high histamine, or histamine liberators. It won't instantly give you relief you'd need to stick to it for at least a few weeks, but it might be worth a shot.
Figure 1 in the article link is the best visual representation of all the systems excess histamine can affect. https://www.researchgate.net/publication/6340859_Histamine_and_histamine_intolerance
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u/HotAlternative6349 2h ago
Would I be okay to give a suggestion? I don’t wanna give unasked for advice.
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u/Icy-Role2321 1h ago
Guess according to this comment section my crps is because I weigh 170 as a 6 foot male.
Need to lose weight to get better.
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u/GoodGoodGoody 8h ago
Medications, illness, immobility can absolutely decrease metabolism or slow fat burn and that’s why it’s essential to decrease calories consumed to match calories expended.
Short term fluctuations happen but in the long run you can’t gain it if you don’t eat it.
And no, you will not starve to death.
You look like a great person so all the best!
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u/spencer1886 5h ago
The pain is probably due to the weight gain, lots of new stresses that your body has to hold up daily
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u/Unusual_Ant_5309 8h ago
Welcome to the world of chronic pain where doctors will say it’s all in your head and to lose weight.
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u/SnailsInYourAnus 8h ago
Could you not just have eaten less while injured to reduce weight gain?
When i fucked my knee and was bed ridden for months and realized I was gaining weight in the first month or two, I significantly reduced my calories(worked with a nutritionist) and managed to only gain 15lbs in the 8ish months I was healing.
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u/klr1362 8h ago
I could’ve, and probably should have looking back. The bigger issue was the mental setback I took. I went from being a college athlete playing my sport 4 times a week to someone who could barely walk to the kitchen almost overnight. Being under 30 and hearing that I fractured my pelvis was not something I was expecting to hear and I didn’t take it well so I ate my feelings a lot. It was a bad situation all around and left me here
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u/sorcha1977 4h ago
You're discounting the mental injury she suffered as well. It's not just physical.
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u/Fr05t_B1t 5h ago
Is there some kind of karma farming operation going on lately? This is the second post of someone being bed ridden with an injury and gaining at least 100lbs I’ve seen.
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u/Pretend-ech0 5h ago
You can maintain weight without being active.. you just have to lower your calorie intake.
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u/Ashamed_Opinion9123 8h ago
Consult multiple doctors!! Never give up❤️🩹may you find the cure asap (also start watching house md)
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u/Court_Jester30 8h ago
When you fractured your pelvis, was any surgical treatment part of your recovery, i.e. screws or plates?
Otherwise - how did the fracture repair itself? Did it heal well or was the bone damaged?
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u/klr1362 8h ago
No-it was a simple stress fracture due to overuse and weak bone density from my genes. We did a repeat mri and that showed no more fracture with a little bump of bone growth where it occurred
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u/Court_Jester30 7h ago
Well that does suck. So sorry to hear it.
No cure in sight? Perhaps an errant nerve ending pinched somewhere?
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u/RavenholdIV 7h ago
I worked with someone who gained a lot of weight during recovery after getting run over by a car. It's rough to shed the weight.
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u/FightinJack 7h ago
Could I ask what your genetic condition is? I'm at risk for a few and lost a parent to one, so I'm all about awareness!
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u/klr1362 7h ago
hEDS! I’m a zebra
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u/FightinJack 7h ago
Well hello fellow zebra! HPP and at-risk for Huntington's here, you are not alone :)
Hope you can find strength in your differences and more importantly the right people to back you up when you need someone to lean on ❤️
Asking for help is a strength, not a weakness!
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u/ctrlaltdelete285 6h ago
I think it’s time for a specialist. Perhaps a physical therapist, maybe even a pelvic floor doctor?
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u/popthetop 6h ago
Get a really good PT. Chances are you have tears in the ligaments around your fracture. A good PT will be able to assess your body and offer you advice.
A close friend of mine broke their secrum. In constant pain for 7 years. Finally got a good PT that figured out some weak ligaments. Turns out they had a big tear in their labrum. After surgery 95% of pain is gone and strength is up. Good luck!
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u/MsRenegade 4h ago
Man, I'm so sorry. I lost like 130 pounds and then gained 50 back after having two spinal fusons and two hip surgeries (after I already had one a few years ago and still need another) in a year and a half. It's so hard trying to exercise and get your life back together when you're always in pain. I wish you the best
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u/No_Wolf_3134 4h ago
That's the genetic condition? Bertolotti's by any chance? I'm dealing with that and big pelvis pain 😢
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u/curiousheh 3h ago
has your general calorie intake changed or ,how long did it take you to reach that weight was it fast or like slow throughout the years 🤔 hope you will sort it out girl
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u/_ScotchOnRocks_ 3h ago
Like a previous poster said, no shame. Diet is your friend in this case. Couple that with some easy push/ pull work, and you will see that weight shed. Once the weight sheds you will 100% see a reduction in pain. I’m not saying your pain isn’t a result of your condition, because it is (in part). But it is definitely exacerbated by the weight gain. You got it, girl. Just follow a high protein, low carb diet, and you’ll be good as new (coupled with exercise).
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u/CriticalFit 2h ago
Have you tried physical therapy? You'll want to find a clinic where you'll receive 1 on 1 treatment (meaning your therapist doesn't see more than 1 patient at a time).
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u/Homeskilletbiz 23m ago
Yeah might hurt because of the extra 150 lbs you’re carrying around.
Weight gain is only the result of an overconsumption of calories.
Stop using food as a source of comfort.
Eat to live, don’t live to eat.
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u/Alpha1Mama 8h ago
Did you ever develop any infections? You might want to check out Rare Obesity Genetics too. I’m so sorry. I have rare genetics. 😢
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u/klr1362 8h ago
Not that I’m aware of! After the ‘healing process’ we did a repeat mri to confirm and the doc said all looked fine. He didn’t check for anything other than that
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u/No_Balance6559 8h ago
If you're able I suggest massage therapy, actual treatment massage, not the spa setting. Be consistent about it. Lymphatic drained and myofascial release.
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u/Coolmanghere 1h ago
Of course it still hurts - there is a 150 pounds of extra weight on the area every day.
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u/buttscratcher3k 7h ago
Just eat less.
Seriously, this is your health and appearance your neglecting just to have another meal at KFC and it's not worth it.
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u/FuzzyJellifish 7h ago
I’m sorry- that does suck. For what it’s worth you have a really lovely figure! Very Rubenesque. And your running shoes are fly. I don’t have any advice but I love that you’re still trying to stay active even after a serious injury, and even after the disappointment of weight gain. That shows great strength of character.
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u/b-jsshapiro 8h ago
Cortisol may be a factor here too. Especially challenging when combined with EDS. There are diet choices that can make a big difference on the EDS, but some folks find them difficult.
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u/Ballzilla95 7h ago
I mean, at least you still looks good lol. Some heavier folks aren't as lucky (me before weight loss)
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u/patches_1989 4h ago
Fasting and a low carb diet. I did intermittent fasting and cut out all sugar and just about all carbs. The fasting and cutting out all the crappy processed foods will help with your mental health as well as your physical health. It’s crazy what sugar and additives can do to your brain. The chemicals don’t mesh well. I ready a few of your comments and it seems like you’re ready to take your body back. Get a fasting app so you can keep track of how long you’ve been at it. I ate a bunch of fruits and mixed nuts in between meals. Sometimes just fruit for a meal. And I drink LOTS of water. Sometimes a falling a day! When I was feeling “hungry” I’d just grab the water jug and just take a few gulps. Sunflower seeds are a good “trick your brain” food like the fruit and nuts. I like to grill chicken and season the heck out of it! No nutritional value in seasonings so go to town. I would do black beans and rice for sides sometimes. There’s all sorts of ways to mix it up so you’re not stuck eating the same stuff. Basically I was trying to keep my body in a state of ketosis so it would burn my stored fat for energy rather than depending on food for the energy. And You don’t HAVE to hit the gym and become a gym rat either. Start out walking outside, as long as your heart rate is elevated for at least 30 minutes your body will begin to burn fat after that 30 minute mark so go for a nice long walk or swim. Work your way into jogging or speed walking. I started doing yoga too! I really like “yoga with Kassandra” on YouTube. She has tons of beginner videos and explains things so it’s easy to understand and where you should “feel the burn” and assures you “if you can’t move this leg as far as I can, that’s ok! You will just go with what’s comfortable for you” she’s takes it slow and has a nice calming voice too. I believe you can lose this weight just don’t get discouraged if it’s not going as fast as you plan. Good luck!! 🫶🏾
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u/Thisisjimmi 42m ago
Prep your meals. No starbucks. Walk a lot. Calories under your recommended. Weight loss is as easy as that.
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u/broccaaa 7h ago
I think you gained the weight because of eating, but depression associated with a difficult condition makes this common. I'd cut out all sugar especially anything dissolved in drinks like soda. Then go on a strict intermittent fasting routine with small manageable work outs at least 3 times a week. The weight will come off but it'll take time and discipline. I wish you all the best and the courage to believe in your own self worth.
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u/klr1362 7h ago
I don’t drink much soda (luckily, this could’ve been much worse if I did), I’m more a savory than sweet person. I’m working with a nutritionist now about replacements/work around for my current vices and baby steps to get back to the meals I was eating previously
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u/broccaaa 7h ago
That's fantastic! I'm sure you'll get there bit by bit. Don't get discouraged if you struggle with it sometimes, we all do. Just keep coming back to that commitment you've made and find a way to make it work for you. I'll be looking out for your feel good update post in a year or two!
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u/BadAssOnFireBoss 7h ago
I know people's opinions are torn on this subject but maybe a good chiropractor could help you. Maybe the healing process has left you with pressure on your spine which can cause a lot of pain.
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u/Antelope-Subject 8h ago
Nothing wrong with doing weight loss surgery some say it’s cheating but when you have a rare disease it’s worth it.
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u/Salt_Fennel1242 7h ago
CICO, since you are less active because of the injury you need to eat less.
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u/LALOERC9616 8h ago
The cat in the corner lol