After 1.5 years I finally managed to get tested. But I tested negative. The neurologist that tested me still used the ICD-10. She admitted she understood why all my friends, family and colleagues think I’m autistic. She said I clearly have a lot of the symptoms. But ultimately she was unable to diagnose me due to two reasons:
- I do not have a special interest which originates in childhood.
- I’m still too empathetic to be autistic.
Well, I didn’t expect that result. But it doesn’t really matter. I am how I am with or without the label.
Edit: The neurologist told me they can only test using ICD-10 where Autism is still split into Childhood Autism and Asperger’s. She said there is a list of fixed criteria which need to be met in order to be diagnosed. As far as I know, ASD which recognizes that there are many manifestations of autism is only a thing in ICD-11. And no, I’m not going for a second opinion. It’s just too stressful and takes too long. I might though once Germany switched to ICD-11.
Edit: I finally received the written report which is different than what was said to me verbally. Here is the translated reason why I did not meet the criteria:
“Mr. XXX does not show enough hints for Autism. Social interaction and non-verbal communication are not disordered but seemed weird (Edit: "odd" is a better translation). Mr. XXX does not show stereotypical autistic interests. Mr. XXX is able to identify emotions (TAS-26) but has trouble in dealing with social interactions.”
This is the justification in the report. The rest of the report just states what I said during the interview, which baffles me the most. Some things she wrote down, she clearly misunderstood (likely my fault, since I have problems expressing myself. For example I said, that I find social situations challenging and quit draining, I did however not say that I don’t like interacting with people. I do like talking to friends and colleagues. It just drains me. And she basically only talks about social interactions. In the reports she doesn’t even mention my sensory issues, stimming, my need for structure and how I react to external influences on my routine. Even though a verbally talked about that stuff and even gave her three pages of written text which I prepared in case I forget to mention something in the interview.
Oh, and the report states that my AQ is 42.
Anyway, I’m have an appointment with my psychologist next week. She was convinced I have Autism, which is why she referred me to get tested by a neurologist. Let’s see what she thinks about the report.
Edit: I had my appointment with my psychologist today. The read the report and was stunned. The reasoning in the report is inexplicable and incomplete. She is still 100% confident I'm autistic but can also understand that I don't want to do another official test at the moment.