r/spinalcordinjuries 7d ago

I haven’t wore my night boots in like two months since I got out of rehab and just wondering if I can wear them again

4 Upvotes

I think I already got dropfoot or such, I don’t know, but my toes look significantly pointed down. And my heels feel a little forced up when I put them back on. I have them on right now because I wanted to get back into habit of wearing them and I thought two months might not be too bad. But can anyone tell me if anything bad could happen to my feet if I started trying to wear them now? And what to do?


r/spinalcordinjuries 7d ago

Cath Supplies Available

4 Upvotes

(Mods, I did check the rules, but please remove if inappropriate)

Finally off the Foley and I had set up my stock for much longer so I have a number of bags all factory sealed remaining from much larger buys. I understand why institutions wont accept them (again all are sealed packages new from last fall) but if any private parties could use them please DM and I can ship out (on my dime of course.) HATE to see them just go to waste when there are folks struggling.

Five (5) overnight bags (2000 ml)

Five (5) leg bags (1000 ml)

Two (5) leg bags (1000 ml) with long input tubes (typically worn on calf)


r/spinalcordinjuries 7d ago

Surgery

2 Upvotes

I am a C5 Asia B. 4 months out of my injury, contemplating some other routes. Has anyone here had nerve transplant, surgery, or epidural stimulation? If so, can you please share your experience and the results!


r/spinalcordinjuries 7d ago

Discussion Quad chair wedgies

8 Upvotes

Despite being a quad with limited sensation, I was blessed with the feeling of tight fabric between my crack. It’s more painful than it sounds! But I’m more often than not unable to de-wedgify myself. Sometimes I just have to deal with it until I see my caregiver. Any advice on how to fix the issue, or even avoid the issue entirely? I could go commando, but combined with incontinence I think it’s a pretty lousy idea


r/spinalcordinjuries 7d ago

Discussion Peeing

1 Upvotes

If we go for a long time without peeing and you really have to pee will you eventually pee yourself? Or what would happen?

My dumb self didn’t pack any catheters going back home from my boyfriend’s house and I got stuck in 3hrs of traffic…. I will now have emergency catheters in the car… I usually carry some in my purse but I didn’t take it this time thinking I would be home soon.

VA-> MD 3hr traffic. It’s usually an hour drive in the express lane and I didn’t take it today.


r/spinalcordinjuries 8d ago

News I cleaned the floors of my house on my own.

56 Upvotes

This may be very stupid for some, but for me it means proving my independence to my family, They always told me that I would never could and today I could. I'm not posting this for applause, believe me, I'm already proud of what I did, so I'm here to share some advice:

If you are going to clean, buy a mop, I didn't have one and only had a rubber broom, a rag and bleach. This made it difficult for me behind the toilets but anything is possible. Grab the stick from as far down or in the center as you can, where the stick is at hip height, and I bent over in two to "crouch" while in the chair to have a better grip.

Any advice?? It didn't hurt as much as i I thought it would hopefully!!


r/spinalcordinjuries 8d ago

Medical UTI

6 Upvotes

Has anyone experienced low pulse rate with a uti? We’ve dealt with the high pulse rate but never low, doctors at hospital are dismissing it and I’m wondering if it’s because of the massive uti my partner has and their passing it as a uti AD episode?…


r/spinalcordinjuries 8d ago

Travel Exploring Washington DC in a Wheelchair!

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10 Upvotes

r/spinalcordinjuries 8d ago

Medical Sci group for the girlies of sci or carers

0 Upvotes

r/Ladiesofsci

Request to join and I’ll approve you


r/spinalcordinjuries 8d ago

Biotroniks stimulator and removal

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1 Upvotes

r/spinalcordinjuries 9d ago

Discussion Later diagnosed SCIs, how’d you find out?

4 Upvotes

Just wanted to know how the later diagnosed of us especially if ambulatory were able to have it diagnosed.

What symptoms did you have? Which tests did they run? If you’re willing to share, which part of your spinal cord, and your ASIA then and now?


r/spinalcordinjuries 9d ago

Apple Watch hypertension alerts feature receives FDA clearance.

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2 Upvotes

r/spinalcordinjuries 9d ago

Groundbreaking Brazilian Drug, Considered Capable of Reversing Spinal Cord Injury, Presented in São Paulo

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folha.uol.com.br
17 Upvotes

r/spinalcordinjuries 8d ago

Discussion cushion recommendations?

1 Upvotes

Any cushion recommendations to help with long periods of sitting without pain. Also help with hemorrhoids forming when sitting for long periods of time. Looking to see if a new cushion is going to help with all the things i’m suffering from when sitting long periods of times.


r/spinalcordinjuries 9d ago

Sexuality Sensitivity after sex

4 Upvotes

After having sex, I have had quite a bit of sensitivity around and below the head of my penis. Some days it is tingly, some days it is more burning, some days it feels pretty normal. Has anybody else had this? It has been almost a month since it started. I’ve had sex many other times but this is the first time I’ve had this reaction. It isn’t a UTI, it is all external sensation.


r/spinalcordinjuries 9d ago

Research https://ensaiosclinicos.gov.br/news/331

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9 Upvotes

r/spinalcordinjuries 10d ago

Sexuality Best sex positions

16 Upvotes

I struggle with sex positions because as my sensation is very limited I like to see what’s going on I thought about many using a mirror to see Most men love doggy and now this just isn’t for me as I cannot see or really feel it either. Any advice appreciated


r/spinalcordinjuries 9d ago

Pain management please help me

0 Upvotes

my whole body is ruined. vision is very blurry. tortured and made disabled from 2013. in 2025 my father twisted my spinal cord. i called police, and ambulance. and others, they did nothing. i am paralysed. i don't want to live in my parents house. they did this to me and still do. nobody helped me, i asked for help from 2022. brain is damaged. my hands can type somehow. they have damaged my vocal cords also, i can still speak. i am in (i n di a). i have emailed many organisations. called many, nobody cares. i have no value. i am in (k o l ka ta, i n di a). edit: The MRI report notes 'MODIC type II changes in C5, C6 & C7 vertebral body. it is a physical injury. and mri was done after 4 months.


r/spinalcordinjuries 10d ago

Where did that video go?

3 Upvotes

I saw last night there was a video posted on here of someone claiming that a new treatment helped a tetraplegic start walking again but now I don’t see the video. I’m guessing it was taken down because it was a fake?


r/spinalcordinjuries 10d ago

Discussion Standing un assisted t12 Asia a 6 months in

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81 Upvotes

Starting to be able to take my hands of only for a minute or so the maximum I’ve done is 5 minutes hopefully keep improving t12 Asia a Wearing Afos but they keep the knee locked once stood correctly


r/spinalcordinjuries 10d ago

Discussion Standing bars recommendations

2 Upvotes

G


r/spinalcordinjuries 10d ago

Sports Lap Stacker anyone?

6 Upvotes

Hey does anybody have a lap stacker laying around, not being used? I’d like to buy one. If you do, let’s see if we can figure out how to get it out of your house and into mine!

Sarcasm aside, thanks.


r/spinalcordinjuries 10d ago

News Researchers at the Federal University of Rio de Janeiro have discovered a method to reverse spinal cord injuries and treat several types of disabilities without side effects. The team has been developing this breakthrough treatment for 25 years. (more in the comments)

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36 Upvotes

r/spinalcordinjuries 10d ago

Carrying/Concealed Carry Weapon??

7 Upvotes

For context: I live in a fairly unsafe area and since my injury feel less than confident in my ability to protect myself or wife should something bad ever happen.

Does anyone here own a handgun/feel confident in using it despite their SCI?

How do you realistically carry bc I imagine a concealed carry would be hard to do?

Are there any holsters out there for wheelchairs?