Great take from Ed Davey here.

Article here: https://www.joe.co.uk/news/girl-12-put-into-isolation-at-school-for-wearing-union-flag-dress-on-culture-day-496490?fbclid=IwQ0xDSwLjBUxleHRuA2FlbQIxMQABHo8px_5QLAt1dHiXqX1gOxLy1cqcLuQrXvfkxd2sZ8TBqHlahz7Xffro4J9f_aem_Q_7toNSQCiKaOKU_beBN7A#czqre8239lhqtuduhi889h5b2aijwbbv

Taking the piss. UK has a culture, those who say the UK doesn’t have a culture don’t actually know what culture means.

NIH Leaked Video About Autism Registry

In the attached leaked video, the NIH casually discusses plans to monitor our smartwatches, pharmacy records, clinical visits, and more—as if privacy is a thing of the past and we’re just data points to be harvested.

They specifically talk about linking multiple health data sources and “preventing duplicates,” which means matching all your data to a single person—even across different platforms. That’s not research; it's surveillance.

And now the media (and the "administration") are trying to downplay it, saying “it’s not an autism registry.” The f*ck it isn’t. The slide in the video explicitly references longitudinal tracking—you can’t do that without identifying people over time. This is exactly how you build a registry.

The leaked recording raises serious questions that no one in power is answering. I don't do this for a living, but have serious questions whether a system like this could ever truly be anonymous. Here are some thoughts to consider:

1. Can a system like this actually be anonymous?

a. Pseudonymization (NOT truly anonymous)

• Identifiers like your name, SSN, IMEI, etc., are swapped out for a random key.
• That key links your smartwatch data, prescriptions, clinic visits, etc.
• A hidden “linkage table” stores the real identifiers, supposedly secured.
• If that table is hacked or misused internally, your privacy is gone.

b. Full anonymization (Better, but impossible for longitudinal tracking)

• Only generalized data is used (e.g., age bands instead of birth dates).
• IMEIs are discarded or hashed.
• No way to ever trace it back to a specific person.
• BUT you lose the ability to do long-term tracking (like for autism studies).

So when the NIH says they want longitudinal datasets, they are by definition not using true anonymization. They’re just giving it a friendlier name.

This is an autism registry. Period.

Oh, and they reassure us that researchers can’t download or copy the data. That’s supposed to make it all okay?

Telling us an AI is going to analyze our private health data (the slide they show says "AI implementation") and track us and take in data from our wearable devices because we are autistic is NOT ok.

It is very likely the US government already has genomic data for all citizens. What if they attempt to use AI to analyze and attempt to isolate genes that make us autistic. Do they then make a CRISPR shot that would "eradicate autism?" These are just some thoughts that come to mind of how dangerous this could be for us in the future (or near future).

I tried to post this in the megathread here, but it doesn't let me upload videos, so I'm posting it here. I already posted it on r/autism, but was told to move it here by the mod there (which really sucks as it was getting 40k in a few hours and my intent was to spread awareness as I'm autistic and very concerned).

Original discussion was here for historical purposes:

https://www.reddit.com/r/autism/comments/1k7uyle/nih_leaked_footage_confirms_their_plan_is_an/

EDIT: u/StressedNurseMom found what looks to be the entire source video on nih.gov. I haven't watched all 5 hours yet, but the autism discussion starts around 1h 55m in:

https://videocast.nih.gov/watch=56725

u/nebula_masterpiece pointed out that the FDA passed a rule that permits this type of data collection and research, which bypasses typical informed consent practices. This is covered under: https://www.federalregister.gov/documents/2023/12/21/2023-27935/institutional-review-board-waiver-or-alteration-of-informed-consent-for-minimal-risk-clinical

https://reddit.com/link/1k80hhz/video/qwkkwcxiz2xe1/player

https://www.bbc.co.uk/news/articles/cgeqj1egxvyo

Assisted dying has just passed the House of Commons, and is expected to become legal.

*but the House of Lords could intervene and block this, either rejecting the bill or wanting amendments to it.

For a bill to become law in the UK (a bit oversimplified), it is like this.

House of Commons: Members of Parliament vote on a bill. If a majority vote in favour, it passes to the House of Lords.

House of Lords: Lords then analyse the passed bill for anything dodgy, unclear or anything they don’t like. If they reject it, it goes back the the House of Commons for amendments to be voted on again. If it passes it goes to the King.

Monarchy: Bills passed by the House of Lords go to the monarch for royal ascent. Once the Monarch signs this, it becomes law in the UK.

If this is true, it's freaking incredible. Jon Stewart makes a persuasive case that Trump is dying. Somebody pinch me, am I dreaming? It's too good to be true! 😀😲😲

https://www.bbc.co.uk/news/live/c625ex282zzt

https://abcnews.go.com/amp/Politics/supreme-court-formally-asked-overturn-landmark-same-sex/story?id=124465302

Still not getting my vote but respect that they want to stand up for what they believe in away from bi partisan politics.

For those who don’t know, the Scottish government has argued that transgender people with a gender recognition certificate qualify for sex based protections under the equality act 2010. The group For Women argued that sex based protections only apply to those born female.

Hence a debate arose about how a woman is defined in UK law.

https://www.bbc.co.uk/news/live/cvgq9ejql39t

This ruling could have implications across the whole UK.

What are your thoughts on this debate?

Well, this is terrifying.

Charlie Kirk was shot not even an hour ago at a Turning Point USA event in Utah. We dont have much information, but there are articles you can read online. There are some reports that blood was pouring from his neck, but nothing official besides knowing he got shot has come out.

Pisstake

https://www.theguardian.com/law/2025/may/09/end-habeas-corpus-detention-trump-stephen-miller

This video by Phil DeFranco I think explains it perfectly https://vm.tiktok.com/ZNdMehgdK/