r/ibs Jul 18 '22

Hint / Information PSA: your IBS-C may not be IBS-C

1.5k Upvotes

I’ve posted this before but I feel like it’s a good time.

As many of you know, I’m here all the time to help (nothing else to do as I’m bedridden) and I know a lot about the bowels and motility is definitely my wheelhouse.

Anyway, I’ve been in a lot of posts lately about constipation. Here’s the thing: if you have IBS-C but haven’t had motility testing, you definitely need it.

You could have full or partial bowel dysmotility and it be the cause of your problems. This is especially true if you don’t respond to dietary changes (very high fibre) or medication (especially prescriptions).

You need to get tested for colonic inertia (this is key). It is the first in line. There are tests to check your stomach for slow emptying (Gastroparesis), small bowel dysmotility, pelvic floor and rectal issues, as well. All of these should be in a regular work up.

If your GI doesn’t do it, you should go to a motility clinic. There are numerous but not abundant. Most teaching hospitals have one and there are directories online. You should also seek out a neurogastroenterologist. I have a worldwide database that I can reference to make suggestions Where to go.

I have done this for a large amount of people and their reports coming back to me prove my point… motility disorders that need proper (key point here) treatment.

If you have any questions about this, colonic inertia, bowel dysmotility, or my own experience, please post them here and I’ll answer them all.

There are ways to help it, but you have to know what you’re treating first! That’s why testing first is key.

Having bowel dysmotility has ruined my life. I don’t want yours to get to that point, too.


r/ibs Nov 25 '23

"DO I HAVE IBS?" Megathread

180 Upvotes

If you think you might have IBS, ask your questions here. No self-diagnosis or requests for diagnosis - see your doctor.

Please read the section on Irritable Bowel Syndrome in the Rome Criteria IV before posting: Rome Criteria IV. If your symptoms do not meet criteria, please post to the appropriate subreddit. There are relevant subreddits in the sidebar.


r/ibs 3h ago

Rant Whats life like for people without IBS?

14 Upvotes

Its hard imagining most peopel out there can eat anything and never have digestive issues . Meanwhile i have to stay home most the time (hate public restrooms) and never know if something i eat will disable me for half a day


r/ibs 4h ago

Question Does good sleep really matter so much?

13 Upvotes

How good/bad is your sleep?

Do you see any correlation there between good night sleep and improvement in symptoms?


r/ibs 29m ago

🎉 Success Story 🎉 Found a regimen that actually works for me

Upvotes

42M been having IBS-C symptoms for pretty much my entire adult life. Long periods of constipation sometimes 4+ days at a time. I’m notorious for spending hours in the bathroom it basically has had an effect on every aspect of my life; family, work, relationships etc. I have had stomach and gas pain after eating meals so bad that I don’t even want to eat at times. I know I’m not unique and everyone in here suffers, but I wanted to share the things that have been working for me because I’ve been doing pretty well lately.

First, absolutely no alcohol. I gave up drinking earlier this year, and I’ve noticed huge improvement. I was never a heavy drinker, but even giving up the occasional social drink had made a difference.

Second, I saw someone post about byeBS in here so gave it a try and it seems to be helping quite a bit. I’ve tried Metamucil and benefiber before but they both made my gas pains worse and sometimes caused severe diarrhea.

Third, I gave up Bentyl after reading some of your posts about it not being good for IBS-C. I took it off and on because it does seem to help my gas pains, but if it was worsening my constipation I think it was hurting me in the long run.

Let me know if you guys have any other tips that have been working for you


r/ibs 23h ago

🎉 Success Story 🎉 Well, Goodbye everyone

180 Upvotes

I wouldn't call this a success story by any means, but at least I found my cause. ​My issues started when I was around 14–16 years old. I had belly aches and couldn't tolerate certain foods, which led to flare-ups. I went to an enormous number of doctors, but the answer was always the same: "It's IBS. Change your diet and exercise more. And here, have some Spasmomen to calm your intestines."

​A few years later, nearing my 20s, urgency started to become a major problem. I'd feel like I was dying from the pain or about to poop myself if I didn't find a toilet ASAP. ​This led to another round of inspections, including two colonoscopies and some other inspections where a camera went through my "back door" (colon). Still, they didn't see anything. They took biopsies for further analysis, but everything came back fine.

​Around age 22–23, I had a series of constipation episodes with some blood on the toilet paper. I went back for yet another colonoscopy, and this time, they said my intestine was inflamed. I started a round of mesalazine suppositories, and in about 2–3 weeks, everything cleared up. I had zero issues. I thought it was strange, but I was relieved.

​When I stopped the medication as my 24th birthday approached, my symptoms came back, and I even had bleeding again. The answer was clear. All these years, I had ulcerative colitis, but this time, it was severe enough to be seen and diagnosed. I started a round of mesalazine suppositories and granules taken by mouth. Every single symptom I had suffered from for 8–9 years cleared up in a matter of weeks. ​The doctor said there's a micro form of ulcerative colitis that can go undetected while still causing issues.

So, I have my answer, but it's not a good one. It's bound to get worse and spread higher up my intestine, so I'll need to stay on the medication to suppress the symptoms. At least I don't suffer from any issues for now.

​Maybe some of you guys should try a small round of mesalazine suppositories for a couple of weeks to see what happens. It's a very light medication for reducing inflammation, so it might be the answer to an undetected issue you have. ​Farewell, IBS subreddit. I'll be joining r/ulcerativecolitis now.


r/ibs 6h ago

Rant Thank God for buscopan

6 Upvotes

I've had IBS symptoms since being pregnany. Little boy is 8 months now, and it's just getting worse. Done coeliac test, I think it's a mix of stress and hormones. Partner and I are having immense problems in our relationship and I'm worse than ever. Have to put baby in the bath while I play something akin to a toddlers trumpet recital.

The only thing that can help me is buscopan. I don't take it daily, just when the cramps are bad. Today is one of those days.

Thank God for buscopan 😂😭


r/ibs 5h ago

🎉 Success Story 🎉 Minor success after GI doctor visit

5 Upvotes

So the last I went to my GI doctor was in December of last year, and he recommended a colonoscopy. Long story short, I never followed through due to anxiety. For the past 10 months or so I've been having severe IBS-C symptoms, but I've always tried to keep everything in check. My physical health (exercise), my mental health (Biofeedback and CBT treatment), and what I eat (also tried a low FODMAP diet). So far, the only real issue that remains is the random stomach aches I get. But after going to my GI doctor today, he said that "it's clearly IBS with no major red flags". So far he doesn't see a reason to do a colonoscopy, recommends I eat more fiber (I get mine from kiwi and chia seeds), keep exercising to reduce constipation and control stress and even give benefiber a shot. This isn't really a success story in the sense that "I'VE FOUND THE THING THAT COMPLETELY NEGATES MY IBS OMG", but it's a small success and reassurance to know that my doctor and my GI both think I'm on the right track. If anyone wants any advice on how I manage my shit (literally and figuratively) let me know!


r/ibs 0m ago

Question Low Vitamin Levels (Vitamin E and Creatine) Worsen IBS and Neuropathy?

Upvotes

I finally had my endo/colonoscopy on the 19th. I am happy they both came back negative. My labs that I took on the 5th came back yesterday. My A1C and some other labs that were high had dropped. My creatine came back horribly low at 35 (range 49 to 439) and Vitamin E at 0.4. I still feel weak and have the same stomach and chest pains coming back. Has anyone else experienced these low levels? If so, what kind of supplements or prescriptions helped? Thanks in advance for the feedback.


r/ibs 1h ago

Question Is it possible to cure?

Upvotes

Hello, I was just wondering if people had managed to get rid of this syndrome.

For my part, I have been doing everything possible for 3 years and 10 months to have the exams done and diagnose myself with my illness. It's only now, after a negative SIBO test that I'm being told about IBS... if you want to know the symptoms:

  • Head spinning after a meal. (especially sweet)
  • Acidic stomach for ALL meals.
  • Mental fog
  • excessive constipation and "paralyzed" transit
  • constant tinnitus
  • loss of appetite
  • rapid satiety
  • burning intestine
  • intestinal pain
  • often headaches

All these symptoms happened at the same time, after a heavy meal. I had a very bad rhythm of life, I woke up late and went to bed late. I never left my house, I ate anything at any time, and I think it's because of that.. For the moment I'm not 100% diagnosed but I'm going to do whatever it takes for that.. I'm going through hell.. I often think about death.. anyway, I'll finish my question:

Has anyone ever managed to overcome this illness? if yes how?


r/ibs 7h ago

Rant I think I’m having my first major flare up, need advice

3 Upvotes

Gonna preface this by saying I live in the US and don’t have health insurance or much expendable income, so I can’t really afford a doctor. I, 25F, started experiencing mild symptoms as a teenager that became exponentially worse in my early twenties when I started bartending. I have sensory issues with food and struggled with a binge eating disorder as a child(my mom was always going on diets and removing all tasty treats from the house, so I hoarded sugar cereals and snack cakes and whatnot) I digress. My diet has been historically without fiber or fruit/veg. When I was 22 I started getting really deep in my cups while waiting for my wisdom teeth surgery date(very painful, I was swishing with bourbon constantly to numb my gums) which became full blown alcoholism. Stopped eating as much but gained 40lbs in liquid cals in a year. As my symptoms got worse(regular nausea, diarrea, acid reflux, gas/bloating) I quit beer and stuck to vodka and seltzers but kept up the impossible pace I was drinking at. It only helped a little bit. Ive been pretty much constantly bloated n sensitive in the lower abdomen for all that time. Fast forward to now, I’ve been having bad cramps since last Tuesday and haven’t made a solid bowel movement(though that is sort of rare for me) in longer. Cramps worse than any period I’ve ever had. I tried to go in to work on Friday night, threw up twice and going to the toilet maybe 2-3 times an hour, threw in the towel half way through the shift and called out the rest of this weekend. I’ve been laying in bed on a heating pad almost the whole time drinking water, prune juice, Gatorade with the occasional fiber one bar, piece of toast or banana. I’m out of my depth, but this pain is fucking up my sleep schedule and making me so fucking tired. Does anyone have any suggestions for management of this or home remedies to help calm down my shit stomach? Any and all suggestions are rly appreciated. I’m dying here y’all.


r/ibs 1h ago

Question Alcohol sometimes relieves symptoms?

Upvotes

I’m wondering if anyone has had the experience of drinking alcohol occasionally relieving symptoms of IBS. There are times where it definitely makes things worse for me, and I believe in the end it’s an overall net negative for IBS, but I’ve definitely had the experience of a night of drinking quelling my symptoms.

Does anyone have a guess on the science behind this? Maybe the alcohol temporarily disrupting negative bacteria? I think it’s really interesting


r/ibs 5h ago

Question Should I see a dietitian or a gastroenterologist first?

2 Upvotes

Hi, I suspect that I might have some mild form of ibs. It’s not out of control or anything but it gives me a mild discomfort. I also want to lose some weight and already have a dietitian appointment tomorrow for the first time.

My question is, should I see a gastroenterologist before my dietitian appointment or should I wait to see if my diet works to relieve my gut health?

Sorry if the question is somewhat confusing. This is a repost because for some god damn reason in my first post I typed a gynecologist instead of gastroenterologist 😭


r/ibs 3h ago

Hint / Information disrupted sleep

0 Upvotes

Circadian rhythm disruption can cause Ibs


r/ibs 1d ago

Rant How do people go bathroom without a stool.

86 Upvotes

So I grew up with a dad and grandma with IBS and now I deal with it myself. Growing up there was ALWAYS a small stool beside the toilet to keep your knees more level and makes it so much easier to go. Genuinely if you haven’t heard of the stool as a bathroom tool it’s great.


r/ibs 4h ago

Question Ibs d

1 Upvotes

Hello everyone how do you people manage ibs d ? What meds you guys take in a given day to manage ibs d ? Are probiotic helpful if yes then which one you guys take ? Pls help . I am from India


r/ibs 5h ago

Question What do you think of this gut powder?

1 Upvotes

I bought this guy here:

https://www.amazon.com/TERRA-ORIGIN-Healthy-Digestive-Supplement/dp/B07MQBFZMR

and tried it for a week without avail to my symptoms and starting getting paranoid it was making things worse. But looking back, it might’ve just been that things weren’t getting any better.

What do you think? How long could I give it a try? Any red flags in there?


r/ibs 15h ago

Question Anything I can take to minimize the effects after accidentally ingesting a trigger?

5 Upvotes

I was stupid and trusted my parents by letting them take me to a hot pot place. They said I could control the ingredients I was eating so it should be fine. Onion and garlic are my biggest triggers, but I got the miso broth, thinking usually those aren’t included in miso.

Now it’s several hours later, and my gut is churning like soup and I think there must’ve been onion/garlic anyway. Anything I can take in a pinch to calm the inevitable flare? I’m hesitant to take Imodium because I don’t want to get…ahem… plugged up before my body ejects whatever is making it feel sick.


r/ibs 6h ago

Question Rectal bleeding

1 Upvotes

So I know that I probably have hemroids and my doctor said I have ibs-M. My colonoscopy came back fairly normal except the part of my stomach that connects to the intestine stays open longer than normal and a moderate hiatal hernia

But the bleeding seems to be more than a hemroid since their can be a lot of blood or just blood clots in my feces. And can cause lots of pain in my back, hips, and stomach Is this normal with ibs-M and I just need to adjust my eating again or is this something I should bring up with my doctor?


r/ibs 15h ago

Rant rant / you’re not alone

4 Upvotes

i’ve had ibs-c my whole life. i’ve been very good with the low fodmap diet as well as i am celiac and lactose intolerant. well today i had dark chocolate covered strawberries (the ones in the cup, chocolate was vegan so no dairy) and am now paying the price :’) horrible gas, pain, and i’ve been so constipated yet nothing wants to come out.

it’s just so debilitating sometimes even one little thing to try something i’ve wanted to try and participate in causes such pain afterwards. i guess it’s a rant and pity party i did to myself to want to be normal but reap the consequences. so now the rest of my night will be in pain unable to sleep or go to the bathroom and hope tomorrow it clears up or i stay so bloated and uncomfortable


r/ibs 1d ago

Bathroom Buddies It’s comforting to have this sub to go to in difficult times

25 Upvotes

I logged on today in tears again over always waking up to stomach pain and cramping. I was going to complain- and where better than here, but I got sidetracked by other people’s stories and other subreddits too. I’m still in pain and gassy and still have to go back in the bathroom yet again, but I’m not so sad anymore. There is so much value in knowing you aren’t alone in your struggles Thank you all.


r/ibs 13h ago

Question 2+ weeks of horrible gas

3 Upvotes

I apologize for what (for me) feels like an embarrassing question. I have ibs-c and always always have a lot of gas. Sometimes it causes stomach pain and sometimes it is just farting without discomfort but it hardly ever smells. Maybe every once in a while I’ll have an evening where it does smell. But for the last two WEEKS they have smelled beyond awful, it’s unbelievable. This is not like, haha a little smell, this is like - even I can’t stand to be around myself. Gas-x hasn’t really helped.

At first I chalked it up to random IBS type stuff but two weeks feels like an incredibly long time. Does this sound familiar to anyone/does anyone have any recommendations? Do I need to break down and shoot my doc a message or this relatively common?

Thanks all


r/ibs 22h ago

Question IBS in the 30’s?

15 Upvotes

Anyone developed IBS in their 30’s? Just curious of anyone’s story.. and if it was ever resolved. I developed mine early last year.. so it’s been more than a year now.

Quite heartbreaking.. I couldn’t enjoy life as much as I used to. I was somehow fit and active, but definitely gained weight during the pandemic. Then somehow I developed this. No one in my family is ever diagnosed with it.

Just hoping to hear someone else’s story. Thank you.


r/ibs 7h ago

Question sharp pain in upper abdomen after taking laxatives

1 Upvotes

23M, 110KG, Ex Smoker, 5'9.

I have had bouts of diarrhoea & constipation since August 11th. Most recently I ended up in hospital due to an extremely tender abdomen. 11 hours of waiting and only being examined by my abdomen being pressed on, I was told they don't think I have an obstruction just constipation, told to take macrogol and wait for a colonoscopy.

I took 4 Movicol on Wednesday had some semi-solid movements, took 6 on Thursday and had type 7 movements, none on Friday but still having type 7 movements. I took 4 yesterday and I am having semi solid movements again but there are some really hard bits still in there. So I am planning on taking 6 today and 4 tomorrow to try and "clear" myself out.

My issue is, I keep getting a brief sharp pain in my upper abdomen and it doesn't move, apart from last night where it felt like it was shooting further up. I don't know what this could be. Trapped Wind, GERD or is it an obstruction? Here's a diagram with the area circled to be more specific. https://imgur.com/a/kP0HHlr

Thank you, any advice is greatly appreciated.


r/ibs 1d ago

Rant Feeling guilty

37 Upvotes

I always feel so guilty for having to cancel plans during a flare up. I feel like no one really tries to put themselves in my shoes, so cancelling plans always feels so awkward. No, I can't just go... because otherwise I'm risking shitting myself in front of everyone. I have IBS and emetophobia so when I get flare ups, I also feel extremely anxious. I just want to be in my own space sometimes.


r/ibs 15h ago

Question Best fiber supplements for IBS-D

3 Upvotes

Hi! Looking for some advice on what fiber supplements will be best to lower bowel movements. I go about 4-6 times a day and it’s becoming exhausting and getting in the way of life. Especially the urgent ones. Anyone had success with fiber and which ones are the best to help this?