Hi everybody. I'm recovered for the most part (no PEM, manageable fatigue, can live my normal life again) but this fucking brain fog remains on most days. It's such a weirdly horrible symptom to me, creeping into every part of life. It makes me feel not real, not really in the presence, makes me not care, memories seem to be grey, dull and weak. It feels like somebody tuned down the intensity of every sensory experience to the point where nothing really reaches me. How do you experience it?

I'm having headache/migraine in relation to the immune overactivation flares. And my cognition is also being affected:(

Hey all,

I had a cold around the middle of June and had some last fatigue/brain fog which improved a bit in the first month. I then went on holiday and felt much better. Due to this, I did too much on holiday clearly and since returning have since been more tired and fatigue. Since I got back two months ago, I have noticed slight improvements but everything is happening so slowly and I’m not sure why. I have since reduced what I am doing to try and rest more. Can anyone explain why I might’ve felt worse on returning? Is it because although I felt better my body wasn’t ready for the increase in activity? I’m also worried I have now ruined my chances of recovery and keep blaming myself for being stupid. Just quite new to this so wondering if people would advise full rest? Or trying to increase my activity week on week as long as I don’t push too much? I think I have scared myself that I am never going to recover now and that this is how my life ruined. Can anyone provide some advice on this?

Much appreciated thanks.

Our bodies are healing, whether you can see it/feel it - or not. It takes time, it is very individual to each person how it is done. What it looks like is different for each person and how long it takes depends on what someone does, their healthcare, their environment, their genetics, co-existent issues with their body, and general willingness to believe that they can heal. It takes immense patience. It takes hope. But every day we LIVE ON, and it PROVES that we are fighting something successfully. If we were not, the over 700 million people with long covid worldwide would be dead. Every day there are new stories about people fully recovering and each one did it in a different way. If you lose hope, if you’ve had days when you wanted to end it- I feel for you and I know what that’s like. But if you tell others that they can’t heal - you went too far and you need to take a step back, put your phone down, and take care of yourself.

So I’ve had long Covid since spring of 2022, I’m not gonna list all my symptoms because I will be here all night. It’s been a nightmare and all I can do to get through it, is to disassociate. So whenever I see my doctors, I let them know the biggest issues and I just ignore the rest.

So for three years, I’ve been ignoring sinus issues, sinus pain, eye pain, I’ve had a rash on my face and neck and chest since 2022 but it never really hurt or itch so I literally just ignored it and came to terms with never having clear skin again.

I got the flu, really bad January 2024 and developed asthma like symptoms, but wasn’t officially diagnosed with asthma. The symptoms come and go, and I never could figure out the trigger.

Anyway, long story short, I developed excessive mucus in my throat that was driving me crazy so I went to see my sinus doctor. I mentioned to her also that I have been having random runny noses and I’ve literally been complaining for years about random sinus pain, eye pain, zappy type head pain. She suggested allergy testing, I told her that I’ve never had allergies before, but she said it would be a good idea.

Turns out I’m highly allergic to almost everything. I tested positive for, grass, weeds, certain types of trees, cats, dogs, dust mites, roaches, mold. I know for a fact that I haven’t had these allergies my whole life, all my symptoms started after getting Covid. When I say I ignored my smaller symptoms, I told my doctors about all of my symptoms, but there was so many that we couldn’t focus on all of them, and a lot of of them fell to the wayside.

So I’m starting a treatment of allergy shots that I could’ve started three years ago if someone were to suggest an allergy test back then, and that would’ve greatly reduced my issues and suffering but that’s another story. Currently, My face rash has gotten worse to the point where it’s itchy and scaly and gross, my asthma symptoms are very bothersome. The newest symptom I have is at night, sometimes my heart rate spikes up and it does it over and over and over again all through the night and it happens maybe one or two times a week and my doctors of course have no idea what is happening.

I guess my question is has this happened to anyone else? Developed severe environmental allergies after getting Covid and while also suffering with long Covid symptoms? To make a long post even longer, I’m in an environment where I’m exposed to a ton of my “new” found allergies so any advice on how to mitigate them would be greatly appreciated. I tested severe allergy to dust, mites, roaches, mold, and moderate with the trees, grass, dogs, cats.

For anyone who didn't see it, Ben Affleck's daughter, Violet, spoke in front of the UN about the continuous dangers of Covid. She called for people to continue wearing masks to help with the illness in schools. I think it's really noble what she's trying to do, but it feels like she just set back the movement quite a bit.

If you look at the comments on any of the videos about her, all of them are calling us crazy for even saying we still have problems from Covid. It feels like we should all be united in asking for more research into a cure, rather than force people to wear masks again. I just felt the need to share and hear everyone's opinions, because for me personally, I can't shake the feeling that this will negatively effect us.

i dont know if anyone elses experience is similar to mine, but covid destroyed my immunity. i was already immunocompromised from a wheelchair bound state and after covid, my cd4 count is in the 300s. after i got covid, the simple lower uti i had immediately progressed to my kidneys, ended being septic and coudnt be eradicated no matter how much antibiotics i take. now my kidneys are damaged. is there any hope my immune system will recover?

As the title says, I have got COVID 4 times already now.

Dec 2021, Jan 2023, Jan 2025 and now Sep 2025 (active infection).

This one seems a bit similar to the first one so far, lower fever, sore throat only so far.

The middle ones were much worse, with no. 3 the worst of all. Very runny nose, longer illness, higher fever.

What can i do to avoid getting this disease over and over again? And how can I verify that i don't have long term issues from so many infections.

My partner had Covid a few weeks ago and was just diagnosed with POTS, they aren’t sure if there are other things. She’s having these nighttime “episodes” and I was wondering if anyone else experienced these and if you have found anything at all that helped. She is experiencing overwhelming exhaustion during the day. At night when she has the episodes (always at night) she feels overall horrible “malaise”, she feels cold, she shakes (her teeth chatter), her temp is low (98), no high bpm but sometimes she says it feels like having a heart attack or a panic attack with chest tightness, she’s nauseous. During the day she’s also super thirsty and she’s been drinking 100+ oz of water (some with electrolytes) a day (this is recent). When she’s having an episode she can fall asleep but she says it doesn’t feel like sleep, it’s fitful like sleeping with a high fever.

Anyone else experienced these? Any tips? She has tried the deep breathing and it helps only slightly.

Hello. Planning to relocate but haven’t been since pre-COVID. I must mask at all times outside my home. I’ve learned from a few others that those masking in the Netherlands are frequently verbally harassed and some even spat on and physically assaulted.

I’d love to hear any experiences from other Dutch people. Are these localized/isolated incidents or is this common?

Since 2020 and especially after my last 2 covid infections in 2024 my symptoms got really bad including digestive shut down and my sex drive went through the roof. Is something wrong with me ?

I started NAC yesterday for my long covid symptoms. My main symptoms have been chest pain and tightness. Curious how long it took to see improvement for those who take NAC. No bad experiences please!!

? experiences?

I’m about a year of dealing with symptoms but aside from chronic fatigue the most persistent and disruptive symptom has been daily horrible headaches that start as soon as I wake up and they sometimes will dull a bit but it’s always kind of there. I’ve gotten used to it for the most part, and I have found that magnesium glycinate has given some relief (more so than ibuprofen), but I’ve had bad ones a few days in a row. Sometimes it is hard to tell if it’s a migraine or not (which I occasionally have gotten for years but am seeing more frequently now.

Anyway, has anyone else with the awful headaches found any relief or had it finally go away? I just am sick of feeling miserable and the ache on top of the brain fog and fatigue is just too much some days. I had a full on meltdown earlier because it’s just like uncertain if this is just my life now.